Rainbow Kids Consultation Service for Children With Life-Threatening Illnesses
打电话给大发娱乐
801-662-3770
选择1) 病人调度
选择2)直接与大发娱乐的临床团队交谈
Rainbow Kids at Primary Children’s Hospital is a consultation service available for any child experiencing a life-threatening illness. Our program is here to help both your child and family deal with any concerns during a time that may be frightening, 让人困惑, 和压倒性的.
Our team works with you to develop goals of care for your child’s individual circumstances and medical condition. Those goals then help shape your child’s treatment plan. Rainbow Kids’ mission is to help you, your child, and your family find comfort, support, and hope.
儿童姑息治疗的益处
As parents of a child with a life-threatening illness, you walk one of life’s most difficult paths. 你的家人不必独自寻找出路. Rainbow Kids is here to offer comfort, advice, and support to your family wherever the path may lead.
Our program offers support and help each step of the way
沟通
Our team can help you and your child communicate with those important to you:
- 你的医疗团队
- 家庭成员
- 孩子的兄弟姐妹.
We can also assist in gathering and understanding the medical information you need to make the best decisions for your child and family.
灵性
Our team is available to help your child and family explore the meaning of what is happening as you face the challenges of serious illness. We can also assist your family in connecting with your faith group, at your request.
情绪
Our team offers a safe setting to talk about the difficult thoughts and feelings your child and family may experience.
身体症状
Our team can help your health care team minimize pain and other uncomfortable physical symptoms, 尤其是在生命即将结束的时候.
社会关系
Our team can help you find ways to stay connected with your child’s social group:
- 学校
- 邻居
- 信仰社区
- 朋友
Our program is available to children and their families regardless of insurance status.
你可以星期一到星期五打电话给大发娱乐 801-662-3770
儿科姑息治疗小组
The Rainbow Kids interdisciplinary team includes a variety of specialists:
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社会工作者
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牧师
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儿童生活专家
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音乐治疗师
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护士
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护士
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Physi-cians
Our team members have the specialized training and experience to work with you and your physicians. We are dedicated to compassion and understanding in all aspects of care. We are here to support you and help you find the path that is best for your child and your family.
在我身边寻找姑息治疗
为最好的儿科护理而建立的关系
For pediatric specialty care, Intermountain Children's Health is affiliated with 大发娱乐. U of U Health的医生在 学校的初级儿童医院, and at locations throughout the Salt Lake City valley.
It's a shared mission of providing health care, education, and research. It comes to life through collaboration on clinical care, research, and educational programs.
Primary Children's Hospital operates as the main pediatric facility for the U of U Health system, providing care in more than 60 medical and surgical specialties such as surgery, 肿瘤学, 心脏病学, 整形外科, 和其他人. Most of the providers at Primary Children's Hospital are faculty members at U of U Health.
这种伙伴关系为发展大发娱乐提供关怀 儿科医学 while educating future generations of health care professionals.
临终关怀和. 姑息治疗
Palliative care is a service offered to any child with a life-limiting illness. It can be offered at the same time as curative or life prolonging treatment.
Hospice care is palliative care at the end of life. It is usually an option when a child has a life expectancy of fewer than six months.
Concurrent care is an insurance benefit offered by select public and private insurance companies that allows for both curative, life prolonging care and hospice care to be provided at the same time. Concurrent care still stipulates that a child must have a life expectancy of fewer than six months.
The graph on the right shows how a palliative care team can provide care and support to a child throughout their life from diagnosis to after death in bereavement support for their family.
Hospice settings and home-hospice care provide extensive services to terminally ill children. Care usually involves relieving symptoms and providing psychological and social support for the patient and family. 除了, hospice philosophy provides for the spiritual and cultural needs of your child and family. The goal of hospice care is to provide the terminally ill patient peace, comfort, and dignity.
研究 has shown that hospice care at home helps a family as a whole. 除了在舒适的家里, family members can also take an active role in providing supplemental, 对病人进行支持性护理.
安宁疗护大发娱乐提供什么服务?
Hospice often includes an extensive multidisciplinary team:
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医生
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护士
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社会工作者
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牧师
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家庭护理助理
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训练有素的志愿者,
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药剂师
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丧亲之痛辅导员
Hospice services are similar to home health care services, but may also include:
- 精神服务和宗教需要
- 24小时服务或随叫随到服务
- 暂息护理的
- 丧亲的支持
资源
If you have navigated here as a result of a medical error or challenges in communication with your medical team and you are seeking a service to provide support and listen to your feedback about your experience, 请与IHC联系 临床关系办公室.
SOAP: Supportive Oncology for Adolescents and Pediatrics
The SOAP team helps children diagnosed with cancer or a blood disease.